About Me

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Newport, Gwent, United Kingdom
I have to manage my FM very carefully, I am a wife and mum of 3 kids, and I work full time. I have good days and bad. I love learning. This is my experience of Fibromyalgia, I'm not promoting any products, just sharing what helps me.

Tuesday, 21 February 2017

Long time, no blog - and here's why.

I know it's been a while, sorry!

A lot has changed. I no longer work for a start. The company I worked for ended my contract, let me go. Despite missing the money (a lot), it's been the best thing that could have happened. I could not have sustained the level of commitment I had always given to my career for very much longer anyway.

Our youngest son flew the nest, meaning that it's just hubby and me. So we got two fur babies to keep me company. They can be a pain in the bum but I couldn't be without them. Peggy and Polly are both Pug X Russell's.

My daughter got married last November. It was the most beautiful day. We have some fantastic and special memories which will last a lifetime.

My oldest son had a beautiful baby boy. Although our son broke up with his girlfriend, our grandson is truly loved and adored by both families, and we are all trying to work through the difficult times by focusing on what's best for Blake.

My hubby and I joined Slimming World and have lost over 6 stone between us. We were desperate to lose weight for the wedding. However, hubby still has a little more to lose and is continuing the struggle. Having the wedding to aim for helped us focus and since the wedding we've strayed a little, but we're still going. We've got a weekend away in June, so that's our next target.

Well I think that's all the news, so we're up to date.

Fibro-wise; I can't decide whether I've deteriorated because I no longer work, or I've improved because I no longer work (and have lost 2 stone)??

How can I be so confused?

When I worked I travelled by train to London 3 days a week, used the tube or walked from office to office, gave presentations to audiences upto 100 people, stayed in hotels most weeks, or drove around 400 miles per week. I have no doubt that I could not do this any more. I'm not sure if I might still have been doing this if my contract hadn't ended, although I was struggling more and more towards the end. I often used my walking stick when working, and was in my wheel chair all weekend. But I seemed to be able to push through when I needed to. This wasn't a conscious decision, it just happened. However, as soon as I relaxed (weekends and holidays) I would hit a massive flare.

However, because I no longer work I'm more able to pace myself, which means that I have to use my wheel chair less often. Although when I feel unwell I'm now able to go to bed - I have the choice. So rather than go out in my chair I choose not to go out - I'm pacing! I have an afternoon nap most days and even a little cold will have me bedridden for a few days.

I do know for sure that my cognitive ability has definitely declined. My brain fog is becoming more difficult especially when I'm tired. I can't find my words, my memory is terrible (both short and long term) and my co-ordination is rubbish. I feel that I have dumbed down! It becomes vey frustrating when I can't communicate in the way that I want to.

To add to my list of diagnoses, I also suffer from asthma, costochondritis and diverticulitis. I'm also currently undergoing tests for kidney problems. What joy!

Well I think I've rambled for long enough. I will try to post more regularly now, especially as I have more time!





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