#ThisisME - A Blog Chain

A Post for #ThisisME

#ThisisME is a blog chain event run by Louise Bibby of Get Up and Go Guru.

A link to her post about the initiative can be found on her site here:
This is M.E. – ME /CFS / Fibro Awareness Day 2014 – Blog Chain

She has requested that each participant answer a series of questions about their illness - either on their own blog, or by emailing the answers to Louise herself, for inclusion on her blog. My contribution follows:

 

#ThisisME

What is your name & how long have you had ME / CFS / FM?

·         Dawn Derraven, I’ve had Fibro for a long time but was only diagnosed just over a year ago.

Where do you live?

·         Wales, in the shadow of Twmbarlwm

Age?

·         47

5 things about you that the people in your life probably don’t know?
(non-illness related):

·         I may seem strong but I’m easily hurt.

·         I can’t stand bad feelings between anyone.

·         I have a very large, fluffy, purple onesie!

·         I really love my job.

·         I wish I’d never had my tattoo.

 

5 things about you that the people in your life probably don’t know?
(illness related):

·         When I’m really tired I can’t talk, think, text or even smile; breathing takes all my effort.

·         I’m not boring or up-tight, it’s just that laughing, singing and dancing, use up too many spoons that I can’t afford to use.

·         I can’t function when I’m in pain as everything hurts, even my teeth.

·         If I forget to do something or forget where I put something, it’s not my fault, it’s my FM.

·         I get anxious if the route out of a room is blocked by someone or something. Even if someone has their legs outstretched.

What one thing do you think most people wouldn’t know about living with ME / CFS / FM that you’d like them to know?

·         I’m never well; I just have various levels of unwell. Some I can cope with, some I can’t.

 

What is the most frustrating aspect for you of living with ME / CFS?

·         Having to cancel plans at the last minute as I feel unwell, being unreliable.

Anything else you’d like to say before finishing?

·         Please take the time to learn about these invisible illnesses, the more you understand the easier it will be for all of us.

 

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Louise says:

·         Any other bloggers who want to join the blog chain, please copy this and fill in your own answers.

·         Then email Louise@GetUpAndGoGuru.com so she can link to your blog post in her original post.

I’d Love You To Join In!!