About Me

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Newport, Gwent, United Kingdom
I have to manage my FM very carefully, I am a wife and mum of 3 kids, and I work full time. I have good days and bad. I love learning. This is my experience of Fibromyalgia, I'm not promoting any products, just sharing what helps me.

Saturday, 30 March 2013

Week 1 - driving, driving, driving

Dear Everyone,

Amy here again.

This week's ratings:

Sleep: 3
Pain: 2
Migraine: 1
Fibrofog: 4
IBS: 3
Tiredness: 3

(1 = minimal, 5 = chronic)

This week has been predominantly spent in the car.  A long journey to Lincolnshire to visit my Grandparents (Mum's parents) which Mum drove the majority of herself meant she spent a great deal of time in the car and had to deal with the associated aches and pains.

You'll see from our ratings that Fibrofog has been a problem for Mum this week.  I've noticed a lot that she's really pulling for her words, and for her its like two words have moulded together and in her mind she has to separate them out before she can say them.  As a family member, I haven't been sure whether its best to prompt her with the word she might be looking for to help her out or let her think of something herself and speak on her own.  She tells me she doesn't mind us trying to help her out a bit because she can't move on until she has the right word that she's trying to get at. 

Fibrofog was a very big problem during work for Mum this week as she was in meetings and struggling to come up with the word she was looking for.

Although its undoubtedly frustrating for Mum to be searching for the right word it does have funny consequences from time to time.  Recently she was in an important meeting with her colleagues and superiors when she was trying to read out the word "content" but couldn't manage to voice the word.  Unfortunately, the word she did manage to blurt out did begin with "c" but ended with "unt" and caused a mixture of suprise and hilarity amongst her colleages!  Embarassing for Mum but when she came home and told us we could barely stand up for laughing so much - luckily she saw the funny side too!

Does anyone else have lots of problems with Fibrofog?  Any tips?

Have a good week,

Amy and Dee.

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